Been awhile

well as you can see it's been about a year since I last posted, a lot has changed in our lives. I hope to be able to keep this up to date a little bit better. We found out we were pregnant last october with our 4th child. Found out it was a girl and was very excited to complete our family evenly. Haley Brooke entered this world June 15 around 12:35 am. She only weighed 6 lbs 3 oz and was 18.5 inches long. That really quite shocked us because of how big our other children were. My labor started with out pitocin (which was what I wanted). I saw my dr that Tuesday and he stripped my membranes, we walked the mall, and because i still didnt have regular contractions we went and picked up the kids and went home. Soon as I got home I started to put groceries away, and started supper. I started having contractions every 3 minutes apart. So we decided living 45 minutes away to head to the hospital. I was already dialated and didnt know how fast I would go. Well we got to the hospital around 8 pm, and from there my labor was getting very painful. I was able to get an epidural. I started having baby heartbeat decelerations so they put me on some oxygen. That helped alot! By midnight I had finally gotten to an 8, and my dr said he would check me in 20 minutes. when he came back he decided to stretch me on my next contraction, then I was ready to push. When she came out she had the cord wrapped around her neck,and had swalled meconium. But they were able to clean her up and out. she was so beautiful! With the longest eyelashes I had ever seen. After they handed her to me jeremy went to go make a few calls. the one doctor who had cleaned haley up said they had noticed some strange things, like a double layer of eyelashes. They gave us some information on lymphedema, her feet were swollen as well. We got moved to our room about 4 am. Didnt get much sleep that morning. around 9 am they came in to take her picture. We also had several doctors come in and ask question and look at haley, telling us she was born with a possible genetic disorder. THey wanted to do genentic testing. Well they also came in around 11 to do an echocardiogram to look at her heart. that's when we found out the devastating news. It was noon and the doctor said they were going to move her to the NICU and told us they were concerned about her heart. It was very small, and very serious. Jeremy and i were in tears. My mom was bringing the kids in later to see her because they hadnt met her, and Stephanie my SIL hadnt even got to hold her yet either. Not really sure how much time passed before they came in and told us they were flying her via helicopter to kansas city. I think Jeremy and I ran on adrealine from there on for awhile. Once the kids got there we were able to take them to see her in the NICU before they flew her. Jeremy was going to ride but something happpened and wasnt able to. They let me out to go home and pack. I met up with Darren and Stepheny Butcher (who decided to come to Kingman to work with us in the Church at the same moment haley was born). we had no clue the real reason God was sending them! I gave them the keys and headed back to Wichita to meet up with my brother and Sil. Mike & Steph drove us up here to KC because we had only had an hour of sleep. we got up to KC around midnight and went straight to be with Haley. We were allowed to stay in the RMH rooms in the hospital. We were in NICU pod 56. we were able to have a corner spot which was better a little more private. the next few days were a blur. I do have recorded notes from facebook from haley's page that was created to keep everyone up to date. I will share those so you can also experience and understand more of what we went through.

Once I find a way to post those notes I will.

Haley was diagnosed with Turner's syndrome (which affects her growth) and a type of HLHS. Her left ventricle is too small and her aortic arch is deformed. I have to go now, but I promise to get back on the blogging band wagon soon.