YIPPEE

We are in shock right now! Yesterday we waited around to see if she would have the surgery and still no decision had been made. The doctors decided to put in an ART line to compare her oxygen saturation levels in her artery compared to her other oxygen sats. THey wanted to get a better idea of what was happening in her. THis morning they tried to put the art line but had no luck (she's such a hard stick afterall). Well Dr O Brian came in and said they decided NOT to do the surgery. They thought right now with her sats doing so good, that if they tightened the bands that they would only drop her sats. They think as she grows she will continue to grow into her bands. SO the plan for now is we are getting moved out of the PICU on to the 4th floor. (It may be tomorrow because she has to receive a blood transfusion due to her hemoglobin a little low). BUt the great news that we are going to be on a different floor for Christmas (if not home by then). The 4th floor is much easier to have visitors and have food and cell phones. We are very excited that Haley is stable and doing so well. Thank you everyone for your prayers. GOD has been so faithful to us and holding us when we are in our moments of weakness. Merry CHristmas everyone......!!

THe MOnday after Thanksgiving Haley got a stomach bug. WE changed her to pedialite, and she tolerated that well. When we switched it back to even half formula/pedialite, she threw up. WE became worried that she aspirated so by Wednesday we took her to the doctor. BY Thursday she was breathing harder so we made the hard choice to come back to KC. That friday she got moved to the PICU where she is recovering. HEr lungs sound great now, she's off oxygen but she became so dry that now her kidneys are messed up. WE came in Sunday Dec 11, to find out her kidneys were shutting down. THe doctors took her off her captorpril, her lasix and stopped her similac sensitive because of the potassium. Monday Dec 12 we are doing much better. She was on milironone since they stopped her heart meds, but they are returning her meds back to normal except for her lasix. Her fluids are going to be closely monitored. We are awaiting word on her heart surgery. They told us friday that they want to retighten her pulmonary band. Then some months down the road proceed with the glenn procedure. We are trying to find time to finish our Christmas shopping because we feel we are going to be up here for Christmas. Im hoping to find a small tree to put in Haley's room so we can have our presents opened up in here with all the kids. Well better continue online shopping :)