Callie :(

My heart is just broken right now for a family we met about a month ago. Being in the hospital (especially the PICU) you meet many different families from different walks of life. This family had a little girl that is 3 months old. She's a twin. She was born premature (of course). And she was diagnosed with Hypoplastic Left heart Syndrome. (HLHS). She had the hybrid surgery (much like Haley). When we were roommates it was very soon after her 2nd band revision surgery. She came in with the breathing tube and she apparantly hadnt ever been off it. They tried to wean her several times but wouldnt tolerate it. They took her to have a test done on her lungs to see how strong they are and she has bronchamalysia. With that she would need a trach. They were told that she wouldnt be able to receive her next surgery (the glenn) either. The family turned to St. Louis and then to Denver to await word if she would be a candidate for a heart tranplant. The family found out that they said no and there is nothing that can be done. Now they have to let nature takes it course. Without the breathing tube she cant breathe on her own. Im so sad :( That has to be so very hard.
Please Father, take away their sorrow if this baby has to die. Help them to turn to you in their time of pain.