Sept 13, 2011

Here we are in the middle of Sept. The other day marked the annivesary for September 11, the day that changed many people's lives. It's been 11 years since that fateful day. We all take for granted that our loved ones will always be here. Never thinking that something as tragic as that could happen to us. That's what I always used to think. All my babies would be healthy. I never thought that anything such as a CHD could happen to us. But the day of Haley's birth was a day that changed our lives. I really do look at life differently now. I hug my babies more, treasure the smallest moments with them, and love being with them. Each milestone, smile, giggle is a huge thing in the life of Haley. She had quite the year. We could have lost her at any time. I have been reading of so many CHD babies losing their lives to this horrible thing. Haley endured 4 open heart surgeries, 4 heart caths, a g tube surgery, a mini stroke, seizures, and many intubations. She has been such an amazing happy girl throughout it all. She has taught us so much. She is behind developmentally, but with her being sedated most of her life, in the hospital what can you expect????!!! She is home now and thriving. Growing is slow, but she is making progress. We still have tubes and a lot of progress to make, but she is here, at home with us. I am beyond thankful that she made it home to get to know her siblings, and find out what life outside the hospital is like. I think we all have those moments that change our lives, things that we never forget. I know that CHD awareness is so important to me now, because I dont want anybody to lose their child because they didnt it could happen to them, it can. I feel like Im rambling on now, so I better go.