Jan 27-

Haley did excellent through her testing yesterday. The cath showed that she still had high lung pressures on her right side so they want to tighten that band. They also are nervous about her dialated pulmonary arteries. We will probably have a date set by next Friday and then 4-6 weeks after that they want to plan on her glenn. In the meantime we will be here that whole time. YIKES. I am so not happy about spending that much time in the hospital, but if that's what we have to do to see Haley through this then that's what we have to do. She was extabated last night and woke up very happy. She's been all smiles today. It does my heart so glad to have her so happy. She has a look of pure joy just when she sees us. I love that little girl so much! I then remember that God loves her even more! I trust that she is in HIS hands and not mine. Nothing I can do can make her better. This has been a very emotional, and exhausting week. I am ready for a nap!