January 13

Support Baby Haley Brooke Manthe and her little "big heart"
January 12-13 Haley got extabated last night, (the breathing tube came out) right away her heart rate went up, and she started working harder to breathe. Her secretions doubled, and they kept suctioning her out. The Dr decided to try noninvasive support and she had a mask put on. She also was given some sedation to help tolerate the mask because as feisty as she is she just plain didnt like it. This morning we walked on and she had the nose cannules in. She is doing much better. She has a touch of pnuemonia and so much secretions in her. They are suctioning her quite a bit! They are going to turn off her milirinone tomorrow and have started her home heart meds already. She is still not the same Haley, but she is getting there. She is also running a fever again so not sure what that is from. They have talked to moving her to the 4th floor tomorrow, but I dont think that will happen yet. She still needs a little TLC from the PICU. OH and before I forget they talked about her at conference this morning. They have decided to do another cardiac cath to reassess things going on. Again discussing which surgery they should do (retightening of the bands or go ahead with the glenn.) Not sure when that will happen, no date has been set.