What a week

I can absolutely say that this ride has been one giant rollercoaster of emotions. We think Haley is fine then BAM she gets hit with something else. I know she has major surgeries ahead of her, I dont like to think too much on that because I'm nervous. I know she will be ok, I have to believe and have faith that GOd will see her through, I just dont want to see my baby in any pain, to see her chest opened up. We all got sick the Tuesday after Christmas with the stomach bug. Eventually by the weekened case Haley had gotten it too. She is such a fragile case that anything can affect her. She got dehydrated pretty quickly. We ended up in the hospital on Tuesday Jan 3. They gave her some fluid bolus, and upped her feeds and then by Sunday she was looking pretty good that she was ready to go home. The only thing that ever is questionable is her lovanox level. We had a really good Monday! By Tuesday she got irritable, started running a low grade fever, and started breathing heavier. We decided it was probably necessary to take her to the hospital. I hate coming here, I love the people, but being so far from home and being away from my kids is the hardest. But it was the right choice regarding Haley.

Here is the post I had on facebook.
JAN 11 2012 Haley was admitted to the hospital around 7. She kept progressively getting worse with her breathing. After her heartrate went up to the 230's (not good). They took her down to the PICU where we sat until 3 am only receiving tidbits of what was happening. A nurse came out several times to update us.... They got several iv lines in her and put in a breathing tube. The scary part was the unknown. The nurse had told us they had called svc surgery in. (We begin thinking oh no, she needs surgery). Then also to warn us the word Ecmo was a possibility. (Our hearts sank- was our daughter so much more serious then what we even thought). When the attending dr came out she said that Haley handled everything great. Theey were very worried she was going into cardiac arrest. She came out stable after receiving fluids & blood. She also had a fever of 105 but that also dropped down again. Her bnp is fine and her blood gases look way better then expected. Her echo done today showed a narrowing in her stent in her PDA. That will be ballooned later in the cath lab. Right now she is fighting an infection found from her breathing tube secretions, shes on antibiotics for that. THANK YOU for all the prayers being said on her behalf. We are both exhausted and need to go shower and take a nap.


January 12-Haley is still intubated, her blood gases look much better, and she is slowly getting better. Since she is on the breathing tube she is very well sedated, otherwise she tries to pull it out. She is very feisty and that is to her advantage.