Yesterday was January 16. Wanted to give the latest update. Haley had a very scary day. She kept getting very fussy and turning purple. We almost thought we would have to go down to the PICU again. After 3 episodes they were on the phone with the doctors in the PICU but they said the only thing different they would do is start her on milrinone. They needed to get an IV in, a PIC line actually, to be able to draw labs as well. She needs one because she's such a hard stick! They were successful in getting the pic line in her right lef, and they gave her some pain meds. They went up on her dose of captorpil and that really seems to helpl She had a good night and a much better day.